Why Cincy Children's?
Matthew and Andrew spent a total of thirty-three months in three different top ranked pediatric hospitals. During their stays we were always with them. Every night, every day and did everything for them that the hospital would allow. Whether it was changing every diaper, holding them for biopsies or giving their meds, we took a hands on approach. So, this recommendation does not come without personal experience. What we learned was this: choosing a hospital based on the rankings, new facilities or closest proximity to your home is not the way to go. At the end of the day, you want to be where the experts are located. As we all know, knowledge comes through experience and where there are expert doctors there is usually up and coming research being done as well. This was the case at Cincinnati Children's Hospital as they specialize in not only bone marrow transplants but specifically immune deficiences and most of the latest HLH research is coming out of Cincinnati Children's. Dr. Lisa Filipovich and the team at Cincinnati Children's are routinely traveling to conferences all over the globe to educate other doctors on the advancements in HLH treatment. In addtition to the knowledge, we thought the team approach to rounds was extremely important and helped reduce the rate of error. By having a doctor from each discipline present, everyone was able to discuss the issues, concerns and plan for each day. Daily rounds typically consisted of between 12-15 people. Due to the serious and complex nature of these children, only Attending Physicians and Fellows were involved in their care.
It is important to note that we received great care at all three hospitals but our experience within the bone marrow transplant unit at Cincinnati Children's was far and away the best. We realize there is no panacea or perfect place, however, despite the outcome of our boys we truly believe that Cincinnati Children's is the best hospital in the world for a pediatric bone marrow transplant, especially for immune deficiencies. They have 24 bone marrow transplant rooms that are full year round. The children there come from all over the world. We just wish we had started our journey at Cincinnati Children's Hospital.
If you are interested talking to the doctors at Cincinnati Children's send an email to HLH@cchmc.org.
Below are quotes from the Cincinnati Children's Hospital website:
"Our multidisciplinary team has performed more than 1,300 transplants in the program’s 20-year history - currently more than 100 children each year. In 2009, our experts performed 108 transplants- making us one of the largest programs in the United States."
"The immune deficiency and histiocytosis team at Cincinnati Children’s treats patients with more than 80 different kinds of immune deficiency and histiocytic disorders. Our physicians have developed treatment regimens that improve survival and are now the international standard of care. These specialists manage each stage of patient care, from immunologic testing to bone marrow transplant, if needed."
"The Cancer and Blood Diseases Institute at Cincinnati Children’s Hospital Medical Center fully integrates clinical and research capabilities in order to advance knowledge and deliver better outcomes for our patients and their families. Our hematology and oncology specialists have earned a national and international reputation for providing sophisticated treatments and cutting-edge research."
"The Diagnostic Immunology Laboratories, consisting of the Clinical Immunology Laboratory and the Research Immunology Laboratory, are committed to providing the highest quality, comprehensive clinical testing available to aid in the detection, diagnosis and treatment of pediatric oncologic, hematologic and immunologic disorders. We're committed to applying scientific advances to promote efficiency, enhance patient care and improve clinical utility.
"The Clinical Immunology and Research Immunology Laboratories are integrated in a comprehensive Immunodeficiencies and Histiocytosis Program at Cincinnati Children's Hospital Medical Center. It interfaces with the Molecular Genetics Laboratory as part of the Diagnostic Center for Heritable Immunodeficiencies, as well as with the Bone Marrow Transplantation Program."